Comparison Between Courses of Home and Inpatients Mechanical Ventilation in Patients with Muscular Dystrophy in Japan
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چکیده
منابع مشابه
Independent living with Duchenne muscular dystrophy and home mechanical ventilation in areas of Japan with insufficient national welfare services
In Japan, there is no national 24-hour home care system for people with severe impairments. Despite this fact, a small number of people with Duchenne muscular dystrophy on home mechanical ventilation pursue independent living. Therefore, our aim was to better understand the process by which these individuals arrived at this goal for independence (i.e., choosing to live at home in Japan instead ...
متن کاملDatabase of Wards for Patients with Muscular Dystrophy in Japan
Twenty-seven hospitals in Japan specialize in treatment of muscular dystrophy patients, including inpatient care, of which 26 belong to the National Hospital Organization, and the other is the National Center of Neurology and Psychiatry. Since 1999, Japanese muscular dystrophy research groups investigating nervous and mental disorder have been developing a database of cases treated at these 27 ...
متن کاملCost and physician effort analysis of invasive vs. noninvasive respiratory management of Duchenne muscular dystrophy.
BACKGROUND Continuous tracheostomy mechanical ventilation users with Duchenne muscular dystrophy are institutionalized or have home nursing services (licensed practical nurse/registered nurse), whereas patients dependent on continuous noninvasive ventilatory support (CNVS) can avoid hospitalizations and publically paid services. DESIGN AND OBJECTIVE This is a retrospective analysis comparing ...
متن کاملLiving with severe physical impairment, Duchenne's muscular dystrophy and home mechanical ventilation
AIM To study life-experiences of people living with Duchenne's muscular dystrophy (DMD), home mechanical ventilation (HMV) and physical impairment. BACKGROUND Since the introduction of invasive HMV in the late 1980s people with DMD in Denmark live longer and have the experience of adulthood and a high degree of physical dependency. METHOD Nineteen patients with DMD and invasive HMV were int...
متن کاملSymptoms, clinical and physiological findings motivating home mechanical ventilation in patients with neuromuscular diseases.
OBJECTIVE To clarify the relationship between symptoms, clinical signs and physiological abnormalities that were motivating the initiation of home mechanical ventilation in patients suffering from neuromuscular diseases. METHODS From The Swedish Home Mechanical Ventilation Register we identified 352 patients with neuromuscular diseases and we looked at circumstances (acute vs elective) and cl...
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تاریخ انتشار 2017